GL is a rare, complex, and clinically heterogeneous disorder characterized by the widespread lack or loss of subcutaneous adipose tissue in most or all parts of the body.
This brochure provides information about GL. Learn about clinical characteristics and serious comorbidities associated with GL.
An informative website you can share with your patients to learn more about GL. In addition to covering information in the brochure above, patients can watch a helpful video to see personal stories of people living with GL.
Lipodystrophy Connect is a patient registry dedicated to generating sufficient data to better characterize the lipodystrophy patient community.
NORD provides advocacy, education, and other services to improve the lives of all people affected by rare diseases.
The ORDR identifies, coordinates, and supports research to help people who have any of the 8800 rare diseases known today.
Rare Disease Day (February 28) recognizes and raises awareness of rare diseases across the globe. Visit the site to learn about the theme for this year’s event.
March 31 is recognized as Global Lipodystrophy Day or World Day of Lipodystrophies. Visit the European Association of lipodystrophy website to learn about different ways to celebrate.